Conditions: Ehlers-Danlos Syndrome
Wears: Sports Band (medium) and Persona Bracelet
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Clare became a MedicAlert member many years ago, long before she had a confirmed diagnosis. At the time, she was fainting frequently and needed reassurance that if something happened, people around her would know what to do. Later, she was diagnosed with Ehlers-Danlos Syndrome (EDS), which affects her connective tissue, and Postural Orthostatic Tachycardia Syndrome (POTs), which causes her heart rate to rise rapidly and often leads to her passing out.
“Even before I had a proper diagnosis, MedicAlert gave me peace of mind and gave my family confidence that if I collapsed, people would know I needed help.”
For Clare, wearing her MedicAlert bracelet isn’t just about emergencies - it’s about reducing fear in those first moments when she faints.
“Even if someone doesn’t know what EDS or POTs is, just seeing I have a bracelet helps. It reassures them that this has happened before and they don’t need to panic.”
Clare has relied on her bracelet many times. One of the most frequent places is at her local swimming pool, where fainting episodes have sometimes led to ambulance callouts. Lifeguards and paramedics can quickly check her bracelet to see what’s wrong and act with confidence.
“The staff find the bracelet really useful because they can read what’s wrong with me straight away.”
When asked what she’d say to someone considering MedicAlert, Clare’s answer is simple:
“If there’s a chance you might be unconscious and unable to speak for yourself, it’s invaluable. It could make all the difference.”
And when asked to sum it up in just three words?
“Peace of mind.”
Clare lives with Ehlers-Danlos syndrome, a condition that often causes her to faint unexpectedly. Wearing a MedicAlert ID means first responders and even local staff, like at her swimming pool, know what’s happening and how to help. For Clare, it’s not just about emergencies - it’s the peace of mind that comes from knowing she’s never alone.
If you believe that your story can help others to understand the benefits of MedicAlert, please let us know!
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