“You don’t always get a warning.”

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Grace Byrne, known on social media as @thebrainwavez, is building a supportive community for people living with epilepsy - creating space for open conversations, shared experiences, and real connection.

But her journey hasn’t been easy.

Grace has been living with epilepsy since March 2023, navigating the realities that often go unseen.

From medication side effects and constant fatigue to the emotional impact that can be hard to put into words, epilepsy affects far more than what people see on the surface.

For a long time, it felt isolating.

Finding connection

One of the biggest turning points in Grace’s journey was connecting with other women who truly understood what she was going through.

“That sense of community has made such a difference.”

It was this experience that inspired her to create The Brainwavez - a support network so that no one has to face epilepsy alone.

Whether someone is newly diagnosed, has been living with seizures for years, or is supporting a loved one, Grace is passionate about making sure they feel seen, heard, and supported.

Living with the unexpected

Living with epilepsy means living with uncertainty.

Seizures can happen without warning - making it vital that the right information is available in an emergency, especially when someone may not be able to communicate.

Why Grace chose MedicAlert

That’s why Grace wears her MedicAlert ID every day.

Her ID clearly communicates her epilepsy, including the types of seizures she experiences, and links to her full medical record and emergency contacts.

It ensures that, if something happens, the people around her and medical professionals - have the information they need, instantly.

For Grace, it’s about feeling safe and prepared.

“I’m actually going to wear this… I feel so safe.”

 

Sharing her story

Through her platform, Grace continues to raise awareness of epilepsy and challenge misconceptions - opening up conversations around both the visible and invisible sides of the condition.

Her story is a powerful reminder that while epilepsy can be unpredictable, support, preparation, and community can make all the difference.

MedicAlert IDs for Epilepsy

Grace (@thebrainwavez) shares how her MedicAlert ID helps communicate her epilepsy in an emergency.

If you believe that your story can help others to understand the benefits of MedicAlert, please let us know!

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