The Jon Shaw Foundation is a collective of friends and family of Jon. They are on a mission to help young people with epilepsy and others who have lost close friends or family in honour of Jon's memory.
Not enough people know about Sudden and Unexpected Death in Epilepsy (SUDEP), and they aim to inform everyone about the risks of this medical condition.
The Jon Shaw Foundation offers financial assistance for equipment and services that are usually not available through the NHS, e.g., monitors, alarms, anti-suffocation pillows, and more.
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