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Everyone has a story to tell
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I first discovered my condition when I was pregnant with my first child, I was diagnosed with Pregnancy induced thrombocytopenia. However, it soon became apparent that it was actually a pre-existing condition.
They informed me that, if I were involved in an accident, I might be in danger of bleeding out, whilst appearing to not be badly hurt.
This led me to search for a way to highlight my invisible disorder to emergency services; the Haematology department are very much in favour of me wearing my MedicAlert.
I have been wearing a MedicAlert bracelet for 18 years. I like the fact that medics anywhere in the world could access information about me by telephone in case of an emergency, as well as the bracelet speaking for if I was unconscious.
Since my Lupus diagnosis, I have had that added to my bracelet, as Lupus can mimic other diseases so it's useful to have it highlighted early in my care. This is particularly the case when I'm away from home as accessing my medical history might take more time.
Once I was admitted to hospital for a really bad headache, the worry was a cranial bleed.
A couple of nurses commented that it was good to see me wearing my MedicAlert with the potentially life-threatening disorder I have.
I also noticed they checked my notes more carefully and considered my treatment more thoroughly, so for me that was good payback in itself.
I try to be careful about 'over-doing' things, as tiredness is a huge problem. If I push myself too far, I just grind to a halt with extreme fatigue, swelling, pain in my joints and then there is the brain fog!
But sleep is one of my best medicines, and I am a champion napper!
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