Promoting awareness for vascular Ehlers-Danlos Syndrome

MedicAlert Protection Programmes | Support Those in Need


There are an estimated 740 cases in the UK alone of Vascular EDS. People with this condition face constant threat of spontaneous ruptures in their internal organs and arteries.

Annabelle's Challenge was founded in 2013 by Jared and Sarah Griffin, following their daughter Annabelle's diagnosis with vascular EDS at the age of 3.

The charity's mission to increase awareness and drive forward medical research, ensuring a brighter future for all those affected by this condition.

How Annabelle's Challenge creates an impact


Helping people understand more about vascular EDS by teaching the public and medical professionals about the condition.


Supporting efforts to find better ways to detect and diagnose vascular EDS early, aiming to improve health outcomes.


Offering financial help, guidance, and practical advice to individuals with vascular EDS to support their physical and mental well-being.

How Annabelle's Challenge can support you

MedicAlert and Annabelle's Challenge are an official partner.

If you have been diagnosed with vascular EDS and join Annabelle’s Challenge, your membership will include a free MedicAlert subscription for the first 12 months saving you £36.

Annabelle's Challenge is continuing its work with MedicAlert as a protection programme partner, to fund a 2-year renewal of membership for existing MedicAlert members with vEDS.

MedicAlert have kindly agreed to support this by funding an additional 6 months, meaning we're able to offer an 24-month membership renewal!

This offer will run until 31st December 2024 and is a available to vEDS members of Annabelle's Challenge who have an existing membership with MedicAlert UK. On acceptance your existing direct debit will be suspended for 24 months.

Annabelle Griffin - ITV News

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