Helping people understand more about vascular EDS by teaching the public and medical professionals about the condition.
Supporting efforts to find better ways to detect and diagnose vascular EDS early, aiming to improve health outcomes.
Offering financial help, guidance, and practical advice to individuals with vascular EDS to support their physical and mental well-being.
There are an estimated 740 cases in the UK alone of Vascular EDS. People with this condition face a constant threat of spontaneous ruptures in their internal organs and arteries.
Annabelle's Challenge was founded in 2013 by Jared and Sarah Griffin, following their daughter Annabelle's diagnosis with vascular EDS at the age of 3.
The charity's mission is to increase awareness and drive forward medical research, ensuring a brighter future for all those affected by this condition.
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