Every May, a wave of red sweeps across communities, social media and organisations as people around the world participate in REDS4VEDS, an annual awareness campaign for Vascular Ehlers-Danlos Syndrome (VEDS). But what exactly is VEDS and why is raising awareness so critical?

Understanding VEDS

VEDS is a rare and potentially life-threatening genetic disorder that affects the body’s connective tissues; The proteins that give strength and structure to skin, blood vessels and internal organs. Caused by mutations in the COL3A1 gene, VEDS makes arteries, intestines and the uterus dangerously fragile. Individuals with this condition are at increased risk of spontaneous arterial or organ rupture, which can occur without warning and often without any prior symptoms.

Unlike the more common forms of Ehlers-Danlos Syndrome (EDS), VEDS often remains undiagnosed until a major medical event occurs. This lack of visibility is why awareness initiatives like REDS4VEDS are so important, not just for those living with the condition but for the medical community at large.

The Power of Red

REDS4VEDS, held every year on the third Friday of May, encourages participants to wear red, share stories and raise awareness across all platforms. From red clothing to illuminated landmarks and digital campaigns, the aim is simple: to start conversations and improve understanding of VEDS.

This year’s REDS4VEDS day takes place on Friday, 16 May 2025 and MedicAlert is proud to stand alongside advocates, families and medical professionals in support of the cause.

Why Does It Matters?

For those living with VEDS, every day can bring uncertainty. Diagnosis often comes late and emergency treatment can be complicated due to the fragile nature of blood vessels and tissues. That's where MedicAlert plays a vital role.

With a MedicAlert ID and a comprehensive medical record linked to our 24/7 emergency helpline, individuals with VEDS can be assured that medical professionals will have access to critical information fast. In emergencies where seconds count, this can be lifesaving.

How You Can Get Involved

• Wear Red: Show your support by donning red on 16 May and sharing your photos online using the hashtag #REDS4VEDS.

• Share Stories: If you or a loved one is affected by VEDS, consider sharing your experience. Personal stories raise awareness and help others feel less alone.

• Support Research & Education: Donate to VEDS-focused charities or support campaigns that fund genetic research and improve clinical understanding.

• Encourage Medical ID Use: If someone you know is living with VEDS, encourage them to wear a medical ID with MedicAlert for added peace of mind.

A Lifeline in Emergencies

At MedicAlert, we understand the unique challenges faced by those with rare conditions like VEDS. Our service ensures that critical medical information is always accessible, whether at home or abroad, giving peace of mind to wearers and their loved ones.

On REDS4VEDS day and every day, we’re committed to supporting the VEDS community with the tools and information they need to stay safe and be heard.